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6-month-old Nagpur girl dies of rare disease; suffers cardiac arrest

The tragic death of a six-month-old baby girl from Nagpur has left her parents and city doctors in despair. Saanvi Sathwane from Nagpur was diagnosed with a rare disease called Type 1 SMA? (Spinal Muscular Atrophy) when she was barely a month old. Born in January this year, Saanvi lost her battle with life on Wednesday early morning at citys super specialty hospital – Icon Hospital.

Saanvis father Devidas had told Nation Next that before she breathed her last yesterday, her heart stopped beating multiple times.
Devidas told us, Saanvi was on oxygen support since a while. We?d rushed her by a train ambulance from Nagpur to Delhis AIIMS hospital few days back, where we weren’t even provided a room saying that the hospital didn’t have any vacant bed for my daughter. We had to keep her waiting in the ambulance outside AIIMS. Dejected, I got her admitted in Safdarjung Hospital in Delhi.

Devidas further said, We tried to get Saanvi into an ICU there but failed. So we had to keep her in the general ward there. That’s when she suffered a cardiac arrest. To my horror, there wasn’t a single ventilator available. My friend who works in the same hospital came across an old ventilator lying down. We used the same for my daughter. That’s when I decided I’d go back to Nagpur because if she ever shes kept on a ventilator, her survival chances wouldn’t even be bleak to say the least. ?
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Devidas said that there wasn’t any cure or medicine available for his daughter in India. The only drugs that could save his daughter’s life were available in abroad, which cost around Rs 15 crore.
Devidas had even requested various ministers on Twitter to help his daughter by arranging for the life saving drugs. However, he didn’t get any response.
??? ?? ???? ?? ???? ?? ???? ?? ??? ??? ??? ?? ???? ???? ????? ?? ?? ???? ??? ?? ???? ???? ???
?? ???????? ??????? ?? ???? ???? ?????? ???????????? ???? @narendramodi ?? ??? ???? ?? ????????? ?????? ????????? ??????? ???? @AmitShah ?? ?? ???? ?? ???? ??? ??????????? #VijayiBharat pic.twitter.com/ESfoUEanbU
? Jagat Prakash Nadda (@JPNadda) May 23, 2019
@narendramodi @PMOIndia @MoHFW_INDIA @drharshvardhan @NITIAayog @RajivKumar1 @ibhushan 6 mnth SMA type 1 baby frm Nagpur brght 2 AIIMS bt didn’t get bed. Admtd in Safdarjung gward, no bed in PICU n no ventilator in gward. Baby suffered cardiac arrest. It’s India’s health care? pic.twitter.com/rLSpNnG10P
? Cure SMA Foundation of India ???????? (@curesmaindia) June 25, 2019
COVID-19
Thane Municipal Corporation adds 25 beds as COVID cases rise
Thane Municipal Corporation (TMC) added 25 additional beds in Chhatrapati Shivaji Maharaj Hospital Kalwa apart from arranging a special ward dedicated to COVID-19 patients. The total number of active patients in the city stood at 252 while five succumbed to the virus. Meanwhile, TMC Commissioner Abhijit Bangar said a ‘death audit’ of patients who died of COVID would be conducted. The TMC has ensured it has additional stock of oxygen concentrators, testing kits, medicines, to name a few. Bangar told HT, “Due to the increasing number of Covid patients, it is necessary for everyone to be alert.”
He added, The number of Covid tests should be increased to stay one step ahead of the disease. As a result, the number of patients is likely to increase due to increased testing. However, as per the ‘test, isolate, treat’ protocol for Covid, it becomes necessary to isolate and treat more and more patients. The testing centres will not remain closed even for a single day. At the same time, more arrangements for testing will be made immediately in public places, markets, railway stations, malls.”
India recorded 3,095 new COVID cases and five deaths in last 24 hours.
Also read: Nagpur records 22 COVID cases in 24 hours
Politics
After Rahul Gandhi’s disqualification, his namesake who contested from Wayanad disqualified

Rahul Gandhi
An independent candidate for Lok Sabha elections named Rahul Gandhi was disqualified from contesting polls for failing to lodge account of election expenses. Gandhi, who’s name figures as ‘Rahul Gandhi K E S/o Valsamma’ in an Election Commission list of persons, had contested the 2019 Lok Sabha elections as an Independent and had received 2196 votes from the Wayanad seat in Kerala – a constituency from where ex-Congress MP Rahul Rajiv Gandhi had won with over seven lakh votes.
However, since it is mandatory for all contestants to submit their account of election expenses among other mandatory requirements under EC rules and the Representation of the People Act.
Rahul Gandhi K E S/o Valsamma stood disqualified to contest polls from September 13, 2021 till September 13, 2024. According to Section 10A, the Election Commission can disqualify a contestant for a period of three years from the date of the order if he/she has failed to lodge an account of election expenses within the time and in the manner required by law and has no good reason or justification for the failure.
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Nagpur News
Nagpur records 22 COVID cases in 24 hours
A total of 22 patients tested positive for COVID-19 in Nagpur in past 24 hours on Thursday. Almost 242 people were tested in the city, out of which 15 belonged to urban area while and 6 were from the rural areas, and one from outside Nagpur district.
At present, there are 72 active patients in the city. Three new cases of the new XBB.1.16 variant of COVID-19 were detected that took the total tally to five in the district.
India recorded 3,095 new COVID cases and five deaths in last 24 hours.
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