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6-month-old Nagpur girl dies of rare disease; suffers cardiac arrest

The tragic death of a six-month-old baby girl from Nagpur Saanvi Sonwane died of a cardiac arrest after she suffered from a rare disease Type 1 SMA.
Saanvi Sonwane

The tragic death of a six-month-old baby girl from Nagpur has left her parents and city doctors in despair. Saanvi Sathwane from Nagpur was diagnosed with a rare disease called Type 1 SMA? (Spinal Muscular Atrophy) when she was barely a month old. Born in January this year, Saanvi lost her battle with life on Wednesday early morning at citys super specialty hospital – Icon Hospital.

The tragic death of a six-month-old baby girl from Nagpur Saanvi Sonwane died of a cardiac arrest after she suffered from a rare disease Type 1 SMA.
Saanvi while being carried inside an ambulance

Saanvis father Devidas had told Nation Next that before she breathed her last yesterday, her heart stopped beating multiple times.

Devidas told us, Saanvi was on oxygen support since a while. We?d rushed her by a train ambulance from Nagpur to Delhis AIIMS hospital few days back, where we weren’t even provided a room saying that the hospital didn’t have any vacant bed for my daughter. We had to keep her waiting in the ambulance outside AIIMS. Dejected, I got her admitted in Safdarjung Hospital in Delhi.

The tragic death of a six-month-old baby girl from Nagpur Saanvi Sonwane died of a cardiac arrest after she suffered from a rare disease Type 1 SMA.
Devidas along with his daughter Saanvi

Devidas further said, We tried to get Saanvi into an ICU there but failed. So we had to keep her in the general ward there. That’s when she suffered a cardiac arrest. To my horror, there wasn’t a single ventilator available. My friend who works in the same hospital came across an old ventilator lying down. We used the same for my daughter. That’s when I decided I’d go back to Nagpur because if she ever shes kept on a ventilator, her survival chances wouldn’t even be bleak to say the least. ?

Also read: More than 100 cops help 20 doctors in Nagpur’s first heart transplant at New Era Hospital

Devidas said that there wasn’t any cure or medicine available for his daughter in India. The only drugs that could save his daughter’s life were available in abroad, which cost around Rs 15 crore.  

Devidas had even requested various ministers on Twitter to help his daughter by arranging for the life saving drugs. However, he didn’t get any response.

 

 

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Nagpur News

Rotary Club of Nagpur Vision’s Padharo Mhare Des concludes successfully

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Nation Next Newsroom | Photographer : Nitin Mankar | Nagpur

Rotary Club of Nagpur Vision’s (RCNV) Padharo Mhare Des was held at Hotel Centre Point, Nagpur, on September 25, along with Winter fellowship cum Official Club Visit 2022-23 for RCNV. The theme of the fellowship was to showcase rich heritage and culture of different states of India.

The occasion was graced by DG Dr Anand Jhunjhunwala, first lady Monika Jhunjhunwala and AG Kamlesh Chotwani. President Dr Shivani Sule felicitated all the new Paul Harris Fellow (PHF) members for the year 2022-23 with the certificates, for their valuable contribution to The Rotary Foundation by way of becoming Paul Harris Fellow, along with Club Secretary Ritika Singhvi and TRF director Mohit Chaudhary.

On the occasion of Azadi ka Amrit Mahotsav, different states came together to show their culture. It was beautifully showcased. PDG, Dr Satish Sule as Yamraj & Pawan Mangolia as Narad with their performance wooed the audience.

This was made possible because of our competent team leaders Bhagyashree Saoji and Priyanka Sharma (Rajasthan), Rutika Kunawar and Dr Puja Poddar (Team Tamil Nadu), Sonal Singhvi (Team Bengal), Rashmi Shahu (Team Maharashtra), Pramod Batra and Sakshi Sharma (Team Punjab), who in spite of their busy schedules made this possible. The beautifully choregraphed act was a result of hard work done by Richa Bhattad, Sonal Singhvi, Rashmi Shahu and Abhishek Ghatode. Honourable DG performing with Maharashtra state enthralled the audience.

Such flawlessly executed event was possible only because of very efficient team mentored by Project Director Pawan Mangolia and Nitya Agrawal who worked tirelessly on the minutest of details to give a memorable evening. Aesthetic decor by Priya Tatiwar dazzled the event.

Fellowship Project advisor P P Nilesh Panpalia, Project director Nitya Agrawal, Pawan Mangolia and Director Mohit Chaudhary left no stone unturned to make the event a huge success.

Also read: Management conclave held at Symbiosis Institute of Business Management in Nagpur

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Nagpur News

Management conclave held at Symbiosis Institute of Business Management in Nagpur

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Nation Next Newsroom | Photographer : Nitin Mankar | Nagpur

Symbiosis Institute of Business Management (SIBM), Nagpur organized management conclave ‘SYMCHARCHA’ on 23rd Sep 2022. This event has been organized by Corp connect team of SIBM Nagpur for sharing knowledge about the latest trends and needs of the industry.

The program started with lighting the lamp by the dignitaries and the address by Director SIBM-Nagpur, Dr Shrirang Altekar.

The program was graced by several senior executives from the industry with names like Shailesh Wadhankar, VP Salesforce, Persistent; Capt. Pranab Prasoon Thakur, head HR, Hindustan Coca Cola Ltd.; Sajesh Jyothiprakash, VP JP Morgan;

Mr. Shailesh Wadhankar while addressing the students, elaborated about change in working pattern post pandemic. He focused on the challenges that the industry is facing in bringing back people to workplace.

Capt. Pranab Prasoon Thakur emphasized on focusing on learning new skills and also on team work. He correlated the army discipline with the success of business. He further elaborated on leading by setting an example. He also shared as how covid taught us that we have to go with the flow sometimes as we don’t have any solution for a situation.

Sajesh Jyothiprakash shared his experience as to how technology plays an important role in today’s environment. He also focused on various investment patterns, market analysis of latest trends etc. He motivated students to develop their skills and focus on their goals.

All the sessions were followed by question and answer by students and faculties to all the dignitaries present.

The day ended with learnings and sharing of experiences.

Also read: Rotary Club of Nagpur Vision creates Happy School for specially-abled kids

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Nagpur News

September 26, 2022 | Nagpur News | नागपुर समाचार | Hindi News Bulletin | Nation Next

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Rashmi Khedikar | Nagpur

Nation Next Nagpur Bulletin brings to you a summary of major news events that took place in Nagpur on September 26, 2022.

Also watch: As millions follow the ritual of fasting, we tell you the scientific reasons behind it

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